SupportOrganizations

From ShortGut - Wiki

• The Oley Foundation (for people on home IV and tube feedings) - Email the staff there with any questions and they have great ideas. They also have a lot of information on current research, how to travel internationally, centers of excellence for TPN management, etc.

• Starlight Starbright Children's Foundation: to "help seriously ill children and their families cope with their pain, fear and isolation through entertainment, education and familiy activities." Includes a page to help children understand and prepare for medical procedures.

• Complex Child: "a monthly online magazine written primarily by parents of children with special healthcare needs and disabilities. It is intended to provide medical information, along with personal experiences, in simple language that other parents can understand."

• Make-A-Wish: grants the wishes of medically eligible children who have reached the age of 2½ and are under the age of 18. Most children with Short Gut Syndrome are considered eligible.

• Victory Junction Gang Camp "enriches the lives of children with chronic medical conditions or serious illnesses by providing life-changing experiences that are exciting, fun, and empowering, in a safe and medically sound environment." Families on the yahoo tpnsupport group have reported very good experiences.