DiscussionGroups

From ShortGut - Wiki

Discussion groups/email lists

Yahoo groups has several relevant lists:

• http://health.groups.yahoo.com/group/Short-Bowel_Syndrome/
• http://health.groups.yahoo.com/group/tpnsupport tpnsupport@yahoogroups.com
• http://health.groups.yahoo.com/group/ostomystars ostomystars@yahoogroups.com
• http://health.groups.yahoo.com/group/Giftsfromheaven-Info/
• http://health.groups.yahoo.com/group/Hirschsprungs_Disease/

The Oley Foundation offers many opportunities to meet other patients/families as well

• Visit http://www.oley.org/ and check out the "Meet Patients" and "Forum" sections to connect with others
  

• Or call toll-free (800) 776-OLEY for a personalized match

See also

• http://www.short-bowel.com/ a relatively new short bowel syndrome forum motivated by the need to share information about how Omegaven is saving children from TPN-associated liver disease